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This page has moved to : http://specialeducation.wikia.com/wiki/PAPPI
PAPPI = Parents And Profesionals for Positive Interventions <br>
<br>
[[User:Gregorio|Gregorio]] 19:19, 26 June 2014 (UTC)


'''PAPPI stands for Parents And Profesionals for Positive Interventions''' <br>


This page tracks the work of the PAPPI group to reduce the use of restraint and seclusion in schools and increase the use of positive behavioral supports.
This page tracks the work of the PAPPI group to reduce the use of restraint and seclusion in schools and increase the use of positive behavioral supports.
Line 6: Line 11:


= Goals =
= Goals =
# Faciliate the ability of parents to tell their story and be heard without retaliation
# Facilitate the ability of parents to tell their story and be heard without retaliation.
# Improve transparency about what is happening in schools and analyze data to demonstrate the use of restraint and seclusion.
# Improve transparency about what is happening in schools and analyze data to demonstrate the use of restraint and seclusion.
# Develop tools and information for school systems to help reduce the use of restraint and seclusion through positive behavioral support.
# Develop tools and information for school systems to help reduce the use of restraint and seclusion through positive behavioral support.
# Increase the size of our group. Ensure that we have actionable tasks for new parents as they express a desire to be involved.
# Increase the size of our group. Ensure that we have actionable tasks for new parents as they express a desire to be involved.
# Improve the laws and regulations on restraint.
# Improve the laws and regulations on restraint and seclusion.


= Ways to volunteer =
= Ways to volunteer =
Whether this affects your child directly or not, you can help reduce the use of restraint and seclusion!
* Join our e-mail list (add link or info)
* Particpate in monthly planning conference calls
* Take a task from the [[PAPPI#To_Do_List | to do list]] and do it! If it's not clear what to do, send an e-mail to the contact and ask for help. Once done, send an e-mail to the contact with closure.


We have small things you can do (less than 30 minutes from a computer) and other ways you can be involved. Feel free to contact us any time
== New To Do List Ideas ==
These are ideas proposed by group members which need definition. The first step is to break the task down in to small parts which can be done in 30 minutes or less. Once that is done, people can pick these up, do them and send an e-mail saying what they did.


Here are ways to get started: <BR>
=== Maine Protect Rule 33 Campaign ===
* Join our e-mail list (contact gregsmithpm at gmail.com)
The goal of this campaign is to generate 200 letters, e-mails and phone calls to Maine State Legislators to protect their new regulations on restraint known as Rule 33.
* Particpate in monthly planning conference calls
* Participate in a campaign (see below)
* Come up with a new idea for a campaign [[PAPPI New Campaign Ideas]]


= Campaigns =
See latest news on that [[here | PAPPI#Maine_News]]


== Ideas for the next campaign ==
* Collect links describing Rule 33. Start here: http://www.maine.gov/education/rulechanges/chapter33/index.html
Please jot down notes, ideas, links and information here. Anything you think we might want to work on in t he fall. Thanks Greg S <br>
* Write a short, focused explanation of why the new rule is important
* Work with this group: http://stophurtingkids.com/
* Find the link to contact your Maine legislator
* Join forces with ghis group: http://www.keepallstudentssafe.com/
* Write an e-mail which can be shared to ask people to contact their legislator including a sample letter. Make sure to ask people to tell us if they did it for tracking purposes. Consider one version for residents of Maine and another for people outside Maine
* Get people to contact congress re: H.R.1893: Keeping All Students Safe Act
* Develop a list of e-mail lists and groups to send the above e-mail to
* Choose an online petition or other tool to generate interest
* Write a press release describing the impact of restraint on children in Maine and promoting the campaign to protect rule 33. Break this in to sub-tasks as needed (e.g. research impact, create protect rule 33 web page, etc).


== Campaign to Protect Chapter 33 in Maine ==
=== Create Online Petition ===
In 2012, Maine updated regulations and created excellent new rules on the use of restraint and seclusion. In December 2012, some Main legislators tried to roll back the changes. Due to hard work by advocates and some lucky timing, compromise legislation was agreed upon. It looks like a very good compromise which preserves the intent of the Chapter 33 updates: <br>
* Find online petition tools. Determine what the peition should say and who it should be directed to. Possibkly starting point is this article: <br>
http://www.huffingtonpost.com/2012/11/30/school-seclusion-restraint_n_2219091.html
http://www.pressherald.com/news/Compromise-reached-on-student-restraint-rules.html <br>
* Come up with a strategy to spread the word about the petition
* Write the peition and submit it to the online site


This campaign may be over unless new ideas are proposed. See completed campaigns below for actions taken.
=== Propose an update to MA laws ===
This recent ruling allows mechanical restraint with a doctor's note. Even if it is against the parents wishes. <br>
http://www.doe.mass.edu/bsea/rulings/11-5444.pdf <br>
* Contact lawyers at Disability Law Center, Mass Advocates for Children or elsewhere. Ask them to help propose a change in the law to address thie BSEA ruling.
* Create a brief talking points write up which asks State Reps and Senators to propose a change in the law.
* Find a lead rep/senator to propose the legislation. Get as many consituents as possible to contact them.


== From Restraint and Seclusion to Positive Behavioral Supports, One District at a Time ==
= Campaigns =
== From R-S to PBIS, One District at a Time ==
From Restraint and Seclusion to Positive Behavioral Supports, One District at a Time
This is our first campaign. The goal is to look closely at one school system and see if we can help make a difference there. We start by gathering data. Then we reach out to people in the community. Then we offer resources and support to help them improve the policies and practice in their schools.


The goal to look closely at one school system and make a difference there. We start by gathering data. Then we reach out to people in the community. Then we offer resources and support to help them improve practices in their schools.
We picked Lewiston, Maine as our first target school system because we found data suggesting it's incidence of restraint is higher than the norm. We also have experience in Maine based on work to update the regulations there. After we learn from this first city, we should be able to apply a similar methodology to other school systems.


This campaign is still under development. See the latest thinking on it here: [[PAPPI From R-S to PBIS]]
The campaign will be a success when:
* The regulations in Lewiston are updated to conform to the new state wide regulations.
* There is a group of parents and others in Lewiston who are empowered to continue tracking and working on this issue.
* We have documented the process of the campaign and can replicate it in other school systems.


Examples of work to change practice in school systems: [http://wiki.laptop.org/go/Northampton:SpecialEducation Northampton]
This campaign addresses groupwide goals 1,2,3 and 4.


=== Contacts ===
== Completed Campaigns ==
[[PAPPI Completed]]
Contact Deb (add e-mail?) and Greg gregsmithpm at gmail dot com for help with tasks or more information.

=== To Do List ===
==== Less than 30 Minute Tasks ====
* Collect data on Lewiston from Federal site: http://ocrdata.ed.gov/ and post it.
* Write overview of the data (e.g. what are the key points, how does it compare to statewide data)
* Find and post links to Lewiston school system policies and special education programs.
* Find e-mails and if possible names of parents in Lewiston who are involved in Special Education. Save them but don't post them online.
* Collect contact names and e-mails addresses of people we want to influence (mostly school board members). Save them but don't post them online.
* Research news and artciles on education in Lewiston.
* Search for contacts in the provider community and at the state level who are motivated to help in Lewiston

==== 30 - 60 minute Tasks ====
* Think about the 30 minute tasks, add detail, add new ones and break them down in to smaller sub-tasks.
* Update and edit the campaign objectives and purpose. Explain why Lewiston and why we, as outsiders, should be involved there.
* Write the first draft table of contents for a packet of information we can share with parents and others in Lewiston. It should express concern for the issue, identify gaps in policies and offer resources and ways to make things better

==== Other open areas of work ====
* When the message and people to deliver it are final, reach out to the school board and administration
* Leave behind a group of empowered parents and others who can continue to work in the community. Get regular updates on how it's going and support them.
* Once we run a campaign like this in one city or town, we document how to do and move on to the next one.


= Meeting minutes =
= Meeting minutes =
Next conference call, Tentatively Thursday March 7th, 8PM contact gregsmithpm at gmail.com for details and dial in info.


[[PAPPI Minutes]]
== Next Meeting ==
Set for Friday, December 7 at 2PM


= News, Links and other resources =
Next conference call is Friday January 18 at 2PM. Agenda is:
[[PAPPI Resources]] <br>
* 10 minutes - Update on recent work and introductions
[http://wiki.laptop.org/go/SPED:Home#Reducing_the_use_of_Restraint_and_Seclusion Collection of laws regulations, news and other info]
* 20 minutes - review of communication channels
* 20 minutes - Review of work on first campaign. Try to get a few more things on the To Do list done.
* 10 minutes - set agenda and time for next meeting


== December 7th meeting notes ==


* Update on recent work:
PAPPI (Parents And Professionals for Positive Interventions) is the name for now. Greg noted he is working with Newton, MA to get details on the design of the rooms in his district. Deb campaigning to protect the laws in Maine as there is some push back from legislators and unions. Deb will be very tied up with thiis work and the holidays for the next 4 weeks. Deb will think of things she can ask people to do to help. She will send that list to Greg who will try to find people to help.

* Discuss communication strategy (facebook group, e-mail list etc.)
** We plan four levels of communication and engagement:
# Private Facebook group. Deb will create a new private Facebook page after the holidays.
# This list of people for regular e-mails and meeting info
# The web site http://wiki.laptop.org/go/PAPPI (everyone should look at that page and make a small edit anywhere on it to show you can access it)
# An e-mail list for people who want to be kept in the loop but will only particpate occassionally. tbd exactly how we set this up

* Discuss status and to do list for first campaign
The To Do list for the first campaign is here: http://wiki.laptop.org/go/PAPPI#To_Do_List
We talked about focusing on a different city where know parents already. Greg is reaching out to help pick a new city. In the mean time we talked about how to do the first task (Collect data on Lewiston from Federal site: http://ocrdata.ed.gov/ and post it.). Cara will start working on that and ask Deb for advice as she gets in to it.

* Set agenda for next meeting with a goal of sending recruiting e-mails in January
Next conference call is Friday January 18 at 2PM.
Agenda is:
10 minutes - Update on recent work and introductions <br>
20 minutes - review of communication channels <br>
20 minutes - Review of work on first campaign. Try to get a few more things on the To Do list done. <br>
10 minutes - set agenda and time for next meeting <br>

Anyone who has 30 minutes free to work on this, pick something from the To Do list. If it's not clear what to do, send me an e-mail and I will give some direction.

== November 16 Meeting ==
Deb and Greg talked on 11/16
Next meeting Friday December 7th at 2PM.
Notes:
We discussed goals briefly. The only change was to add the words restraint and seclusion and positive behavioral supports to goals 2 and 3.
- We brainstormed our first campaign to address goals 2,3,4, and 5

Possible title (I made this up after the call so comments welcome): <br>
'''From restraint and seclusion to positive behavioral support, one school district at a time'''
Steps in the campaign:
# Collect data from Federal site: http://ocrdata.ed.gov/ and other sources to identify school systems with higher than normal incidence (Deb already identified Lewiston, ME as the first one to work on).
# Gather the data, post it on a web site and add context and explanation (e.g. what is the norm, how far out is this system and anything else which explains what it means and why it's important.
# Research the policies (e.g. JKAA) and other info on that school system
# Find wasy to influence the school board and administration to address the issue
## Get the contact info for the school board
## Find affected parents in the target community.
## Find professionals near by or otherwise motivated to help
## Identify elected representatives who can help
## Identify state level administrators who can help
# Create a packet of information and message for the school board (aka school committee in MA)
## It should express concern for the issue, identify gaps in policies and offer resources and ways to make things better
# When the message and people to deliver it are final reach out to the school board and administration
# Leave behind a group of empowered parents and others who can continue to work in the community. Get regular updates on how it's going and support them.

Once we run a campaign like this in one city or town, we document how to do and move on to the next one.

Second campaign idea:
Implementing laws and regulations in states that don't have them
- Identify states that don't have any relevant laws or regulations
- Collect examples of incidents and post that
- Create a packet of information which shows how to create new laws or regulations based on the work done in Maine
- Find groups in the target states and share the packet with them

This one needs more defintion but it addresses the goal 6 of improving laws and regulations.

Other subjects:
- Deb mentioned that she has or may create a private facebook group to encourage discussion.

Action items:
* Deb to suggest some new names for the group (bname should signify: open, grassroots, compassionate, motivated to make change)
* Deb to write down the steps needed to take data off the OCR web site (aka step one in the campaign).
* Once new name is agreed on, Greg to move wiki page to that place.
* Greg to update web page
* Greg to set agenda for next meeting (focused on how we recruit more people and what we will ask them to do once they express interest)

== October 26 meeting ==
* Introductions and brief review of recent work
Discussed our perspectives and goals. Greg talked about Mass initiative and work to create parents group. Deb talked about her work on the regulations in Maine. Bill talked about his experience and sense that this is a growing movement and he has heard from many people fromm all over the country. He thinks the next phase will be addressng issues of retaliation. We all noted that it's a systemic problem and will need a long term concerted effort to address it..

* Adding people to the group
We agreed that anyone who wants to participate can send Greg an e-mail. If they want vto ohelpp advocate with ut, Greg will then add them to the cc and invite them to the next meeting. <br>
'''Note, people who were not on the call, please confirm to me that you are OK with that '''

* Goals discussion. we came up with these goals not in priority order:
** Faciliate the ability of parents to tell their story and be heard without retaliation
** Improve transparency about what is happening in schools and analyze data to demonstrate the use of restraint and seclusion.
** Develop tools and information for school systems to help reduce the use of restraint and seclusion through positive behavioral support.
** Increase the size of our group. Ensure that we have actionable tasks for new parents as they express a desire to be involved.
** Improve the laws and regulations on restraint.

* Agenda for next meeting:
** 20 minutes - Introductions and review of recent work
** 5 minutes - A quick read through to approve the goals.
** 5 minutes - Discuss any logistical issues or ideas (e.g. should we move this to an e-mail list, is the wiki good, too many e-mails or just right?)
** 20 minutes - Brainstrom objectives and campaigns to work on. Each should contribute to one of the goals above.
** 10 minutes - Set agenda for next meeting.

= News =

== Maine News ==
http://www.kjonline.com/news/Maine-teachers-union-reports-dozens-of-student-on-teacher-assaults.html
http://bangordailynews.com/2012/11/26/education/mea-dozens-of-educators-assaulted-in-wake-of-changes-to-restraint-rules/
http://www.pressherald.com/news/Maine-teachers-union-reports-dozens-of-student-on-teacher-assaults.html?searchterm=restraint+%26+seclusion
http://www.mpbn.net/Home/tabid/36/ctl/ViewItem/mid/3478/ItemId/24859/Default.aspx
== National News ==
ABC News Investigative Report:

Thousands of autistic and disabled schoolchildren have been injured and dozens have died after being restrained by poorly trained teachers and school aides who tried to subdue them using at times unduly harsh techniques, an ABC News investigation has found.

With no agreed upon national standards for how teachers can restrain an unruly child, school officials around the country have been employing a wide array of methods that range from sitting on children, to handcuffing them, even jolting them with an electric shock at one specialized school. Some have locked children in padded rooms for hours at a time.

One Kentucky teacher's aide is alleged to have stuffed 9-year-old Christopher Baker, who is autistic and was swinging a chair around him, into a draw-string duffle bag.

See: http://abcnews.go.com/blogs/headlines/2012/11/abc-news-investigation-moms-fight-back-against-harsh-methods-to-restrain-students-with-special-needs/

= Links, documentation, ideas and comments =
Training on positive behavior support
http://www.pbis.org/common/pbisresources/publications/SWPBS_ImplementationBlueprint_vSep_23_2010.pdf

Recent ruling by BSEA in MA allowing Mechanical Restraint based on a school doctor seeing a short video: <br>
http://www.doe.mass.edu/bsea/decisions/11-5444a.doc <br>

Media coverage generated by Op Ed in New York Times: <br>
http://terrifyingdiscipline.weebly.com/index.html <br>

Motivational article http://www.copaa.org/public-policy/standing-in-our-own-shoes/ <br>

Federal resource document: <br>
http://www2.ed.gov/policy/seclusion/restraints-and-seclusion-resources.pdf

Online training for influencing people: <br>
http://www.partnersinpolicymaking.com/makingyourcase/

Documents collected in Maine initiative to update regulations: <br>
http://www.maine.gov/education/rulechanges/chapter33/resources.html <br>

Another concerning r/s article <br>
http://www.sunjournal.com/news/franklin/2012/10/25/rsu-9-staff-facing-challenges-under-new-rule/1271392

Dissertation on how best to train teachers on reducing the use of restraint and seclusion. <br>
http://wiki.laptop.org/images/f/f4/PREVENTION_AND_REDUCTION_OF_RESTRAINT_AND_SECLUSION_IN_PUBLIC_SCHOOLS-_A_COMPREHENSIVE_APPROACH_Nancy_I._Macias-Smith_Doctoral_Project_2012.pdf <br>

A guide book for training teachers on how gto avoiod the use of restraint and seclusion. <br>
http://wiki.laptop.org/images/2/28/FINAL_GUIDEBOOK_Nancy_I_Macias-Smith_04_11_2012_REV_SL_JL_BL_NMS_v2-1-.docx <br>

Article about a positive approach http://www.disabilityscoop.com/2012/10/17/schools-gains-positive-behavior/16670/
SWPBIS success story http://www.toledoblade.com/Education/2012/10/30/Positive-behavior-strategy-seeks-to-lessen-discipline-gap.html

Issues in Ohio that is similar to the push back in Maine:
http://www.dispatch.com/content/stories/local/2012/11/04/state-plan-a-burden-schoolssay.html

Positive interventions being used in Ohio:
http://www.toledoblade.com/Education/2012/10/30/Positive-behavior-strategy-seeks-to-lessen-discipline-gap.html

Video of meetings on use of seclusion rooms in Middletown CT
http://www.youtube.com/watch?v=xqjXovtV6gs&feature=share&list=UUWUxNqPcAFk91nQTLPEKAHQ
http://www.youtube.com/watch?v=Dt8MS3xlT_w&feature=channel&list=UL

News story on mistreatment of special needs students in Georgia
http://www.cbsatlanta.com/story/20100156/da-school-abuse-investigators-will

== Groups on children's and parental rights ==
One trying to pass the Parental Rights Amendment http://www.parentalrights.org/index.asp?Type=B_BASIC&SEC={DE675888-E60A-4219-8A5E-000083244D13}&DE=

And then there's Children's Rights http://www.un.org/cyberschoolbus/humanrights/resources/child.asp

Then there's this petition that is now closed http://www.change.org/petitions/childrens-rights-in-public-schools-students-not-prisoners


{{SPED}}
{{SPED}}

Deb :-)

Latest revision as of 19:19, 26 June 2014

This page has moved to : http://specialeducation.wikia.com/wiki/PAPPI
Gregorio 19:19, 26 June 2014 (UTC)


PAPPI stands for Parents And Profesionals for Positive Interventions

This page tracks the work of the PAPPI group to reduce the use of restraint and seclusion in schools and increase the use of positive behavioral supports.

We work via e-mail and hold a conference call once a month. Leave a note on the discussion page if you want to participate or e-mail gregsmithpm at gmail.com.

Goals

  1. Facilitate the ability of parents to tell their story and be heard without retaliation.
  2. Improve transparency about what is happening in schools and analyze data to demonstrate the use of restraint and seclusion.
  3. Develop tools and information for school systems to help reduce the use of restraint and seclusion through positive behavioral support.
  4. Increase the size of our group. Ensure that we have actionable tasks for new parents as they express a desire to be involved.
  5. Improve the laws and regulations on restraint and seclusion.

Ways to volunteer

Whether this affects your child directly or not, you can help reduce the use of restraint and seclusion!

We have small things you can do (less than 30 minutes from a computer) and other ways you can be involved. Feel free to contact us any time

Here are ways to get started:

  • Join our e-mail list (contact gregsmithpm at gmail.com)
  • Particpate in monthly planning conference calls
  • Participate in a campaign (see below)
  • Come up with a new idea for a campaign PAPPI New Campaign Ideas

Campaigns

Ideas for the next campaign

Please jot down notes, ideas, links and information here. Anything you think we might want to work on in t he fall. Thanks Greg S

Campaign to Protect Chapter 33 in Maine

In 2012, Maine updated regulations and created excellent new rules on the use of restraint and seclusion. In December 2012, some Main legislators tried to roll back the changes. Due to hard work by advocates and some lucky timing, compromise legislation was agreed upon. It looks like a very good compromise which preserves the intent of the Chapter 33 updates:
http://www.pressherald.com/news/Compromise-reached-on-student-restraint-rules.html

This campaign may be over unless new ideas are proposed. See completed campaigns below for actions taken.

From Restraint and Seclusion to Positive Behavioral Supports, One District at a Time

From Restraint and Seclusion to Positive Behavioral Supports, One District at a Time

The goal to look closely at one school system and make a difference there. We start by gathering data. Then we reach out to people in the community. Then we offer resources and support to help them improve practices in their schools.

This campaign is still under development. See the latest thinking on it here: PAPPI From R-S to PBIS

Examples of work to change practice in school systems: Northampton

Completed Campaigns

PAPPI Completed

Meeting minutes

Next conference call, Tentatively Thursday March 7th, 8PM contact gregsmithpm at gmail.com for details and dial in info.

PAPPI Minutes

News, Links and other resources

PAPPI Resources
Collection of laws regulations, news and other info


Pages collected under SPED namespace

BSEA:Decisions
Newton Public Schools
Barnstable Public Schools
Boston Public Schools
Northampton Public Schools
Main page

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